- I'm Katie.
- I'm 23.
- I have Classical Ehlers Danlos Syndrome (EDS).
- Because of the EDS I have Postural Orthostatic Tachycardia Syndrome (POTS) which is a form of Dysautonomia.
- I was also born with a congenital heart defect (CHD) called Transposition of the Great Arteries (d-TGA).
- I've had four open heart surgeries, which I think is pretty bad ass.
- I'm in college, but I'm not sure if I want to study Speech and Hearing Sciences or Applied Media Arts.
- I have am incredible boyfriend, Matt, who I am moving in with, again, in a week and a half.
- I collect things with birds and Hello Kitty on them.
- My favorite things to do are read and sleep.
Thursday, August 4, 2011
Hello.
I never know how to start blogs or diaries or anything of the sort where I practically only talk about my life, so I figured I would just write some facts about me.
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2 comments:
Hi Katie! I have POTS too so I can understand that, but I do not suffer from those other diseases. I'm also in college too, so hopefully you can give me some pointers! Hope all is well! And check out my blog: mrspots.blogspot.com
Hi Katie, I found affordable ring splints on Etsy. Have not tried them yet but I'm trying to let all the Bendy people out there know. I also have EDS and was diagnosed in 1986. I'll post about them as soon as they arrive. Take care. http://www.etsy.com/shop/EDSjewelrycreations
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